Spiderspun Message Board http://spiderspun.yuku.com/directory en-us Copyright 2006, Yuku feeds@yuku.com (FeedMaster) webmaster@yuku.com (WebMaster) Sun, 08 Nov 2009 02:00:00 GMT Mon, 02 Nov 2009 11:06:14 GMT Yuku Feeds 1.0 http://blogs.law.harvard.edu/tech/rss 60 Yuku http://static.yuku.com//feed/bypass/images/button-yuku.png http://spiderspun.yuku.com/directory Yuku - free hosted forums and profiles 88 31 {pics-1.1 "http://www.icra.org/ratingsv02.html" l gen true for "http://yuku.com" r (nz 1 vz 1 lz 1 oz 1 cz 1 ) "http://www.rsac.org/ratingsv01.html" l gen true for "http://yuku.com" r (n 0 s 0 v 0 l 0 )) Search Search Domain q http://yuku.com/search/direct/ <![CDATA[ Alpha 1 Lung Trans plants ]]> http://spiderspun.yuku.com/topic/406/t/Alpha-1-Lung-Trans-plants.html feeds@yuku.com (Jim D) http://spiderspun.yuku.com/topic/406 Mon, 02 Nov 2009 11:06:14 GMT <![CDATA[ Referral from Facebook ]]> http://spiderspun.yuku.com/topic/405/t/Referral-from-Facebook.html
April Sasser If you or a loved one has Alpha 1 Antitrypsin Deficiency a nice website for resources, blogs, etc. is feeds@yuku.com (geskoi) http://spiderspun.yuku.com/topic/405 Wed, 12 Aug 2009 21:29:18 GMT <![CDATA[ Meet for Chat this Saturday at 9pm CST ]]> http://spiderspun.yuku.com/topic/404/t/Meet-for-Chat-this-Saturday-at-9pm-CST.html
With our busy summer now at hand, I know it is difficult to find time to chat. Thus, I thought I'd post a reminder that we will be meeting for chat this Saturday at 9pm CST. If you prefer another day and time, post a note to let us know when to meet you.

I hope everyone's summer is healthy and happy!

Noreen ]]> feeds@yuku.com (spiderqueen noreen) http://spiderspun.yuku.com/topic/404 Mon, 22 Jun 2009 17:19:14 GMT <![CDATA[ New to this site ]]> http://spiderspun.yuku.com/topic/403/t/New-to-this-site.html Hi

I have been searching and searching for a chat room for Alpha's. I have a great Alphanet Coordinator and family but I would really love to chat with others.

Looking forward to chatting.

Karenimage ]]> feeds@yuku.com (Auntie Kay) http://spiderspun.yuku.com/topic/403 Wed, 03 Jun 2009 16:57:01 GMT <![CDATA[ Up date from Stevieanne UK ]]> http://spiderspun.yuku.com/topic/402/t/Up-date-from-Stevieanne-UK.html image




Well here I am again...I had my regular 3 month post TX checkup last week... I just wanted to share my clinic summary with you.

" Stephanie was admitted electively for right side lung volume reduction surgery.
I was delighted to see her looking so well.
Her exercise tolerance has vastly... ]]> feeds@yuku.com (Stevieanne) http://spiderspun.yuku.com/topic/402 Fri, 03 Apr 2009 08:51:50 GMT <![CDATA[ Scientists create 'portable lung' ]]> http://spiderspun.yuku.com/topic/401/t/Scientists-create-portable-lung-.html Scientists create 'portable lung'

A portable lung which could help those with breathing problems lead a normal life is being developed by scientists.

Researchers say their device, which oxygenates blood outside the body before it goes through the lungs, could be an alternative to transplants.

The Swansea University scientists say it could take many years before the device, the... ]]> feeds@yuku.com (spiderqueen noreen) http://spiderspun.yuku.com/topic/401 Fri, 13 Mar 2009 10:36:02 GMT <![CDATA[ Alpha Video ]]> http://spiderspun.yuku.com/topic/400/t/Alpha-Video.html I have a link here for the Alphas to understand it a bit better. image
http feeds@yuku.com (Sheridan) http://spiderspun.yuku.com/topic/400 Thu, 26 Feb 2009 18:28:26 GMT <![CDATA[ Good News....Well I think so!!! ]]> http://spiderspun.yuku.com/topic/399/t/Good-News-Well-I-think-so-.html Hi to all...
Just to let you know that the surgery went OK... I had a bi-lobectomy...pain issues are taking some time to resolve...Most of that is where I had the right lower lobe detatched from the dipahragm. I`m having to retrain my diaphragm...it`s forgotten how it`s supposed to behave LOL!!
My last FEV1 was 1.30 it is now 1.99
My last FVC was 1.74 it is now 2.25
My peak flow was 190
My peak flow is now 300
My o2 sats were... ]]> feeds@yuku.com (Stevieanne) http://spiderspun.yuku.com/topic/399 Tue, 24 Feb 2009 12:43:02 GMT <![CDATA[ new here hi!!! ]]> http://spiderspun.yuku.com/topic/398/t/new-here-hi-.html I have a wonderful family but I feel like a burden to them so I don't talk about alpha 1 to them very much. They know when I'm tired or out of air or gaining wieght by the minute...I guess I don't have to talk they see it all.ha feeds@yuku.com (coffeemom) http://spiderspun.yuku.com/topic/398 Sat, 14 Feb 2009 22:55:33 GMT <![CDATA[ Happy New Year From Here In The UK ]]> http://spiderspun.yuku.com/topic/396/t/Happy-New-Year-From-Here-In-The-UK.html image
I wish for you all....
good health and better breathing days
peace and joy in all that you do
happiness always
Sending positive thoughts and blessings to all in need
Lots of love and hugz
Stevieanne
Alpha1 PIzz

]]> feeds@yuku.com (Stevieanne) http://spiderspun.yuku.com/topic/396 Wed, 31 Dec 2008 12:35:50 GMT <![CDATA[ Thank You Noreen ]]> http://spiderspun.yuku.com/topic/395/t/Thank-You-Noreen.html Image3FamilyoftheHeartNoreen.gif picture by StevieanneW

Just to say "Thank You"...it`s my new hobby...PSP.
Lots of love and hugz
Stevieanne

]]> feeds@yuku.com (Stevieanne) http://spiderspun.yuku.com/topic/395 Sun, 28 Dec 2008 08:03:53 GMT <![CDATA[ " QUEEN" STEVIEANNE`S CHRISTMAS SPEECH ]]> http://spiderspun.yuku.com/topic/394/t/-QUEEN-STEVIEANNE-S-CHRISTMAS-SPEECH.html

Image1MerryChristmasBlank.gif picture by StevieanneW feeds@yuku.com (Stevieanne) http://spiderspun.yuku.com/topic/394 Tue, 23 Dec 2008 16:31:55 GMT <![CDATA[ November is COPD Month ]]> http://spiderspun.yuku.com/topic/390/t/November-is-COPD-Month.html feeds@yuku.com (spiderqueen noreen) http://spiderspun.yuku.com/topic/390 Sun, 23 Nov 2008 20:49:10 GMT <![CDATA[ Michael Has New Lungs!! ]]> http://spiderspun.yuku.com/topic/388/t/Michael-Has-New-Lungs-.html My sweet friend, who I love so very much, got the call yesterday and had his surgery last night at UCSF. I spoke to the nurse in ICU a little while ago, and she said his surgery went very well and that he's doing fine this morning. A miracle.... My last visit to him was in July, and his condition had gotten so much worse from my prior visit in March.... He was at 12% lung function and suffering terribly (although he never complained). He had one call 2 months and... ]]> feeds@yuku.com (JaniceforMichael) http://spiderspun.yuku.com/topic/388 Sat, 15 Nov 2008 09:54:00 GMT <![CDATA[ Hi Chatters ]]> http://spiderspun.yuku.com/topic/387/t/Hi-Chatters.html
It's been t least two weeks(?) since I've been in chat, I've lost count. But I'm going to see if can get access to a laptop from the hospital to enter the room tonight (9pmish CST). My father is still in the hospital since Sept 15th and every weekend (I can spare) is with my family. It's been quite challenging to rearrange life and I feel like a lost tourist in a new country at points, but we are all pulling together (family) to figure it out somehow.... ]]> feeds@yuku.com (spiderqueen noreen) http://spiderspun.yuku.com/topic/387 Sat, 25 Oct 2008 11:46:40 GMT <![CDATA[ Calling Amy Winehouse ]]> http://spiderspun.yuku.com/topic/384/t/Calling-Amy-Winehouse.html Don't drop the singing, Amy. It's good for the lungs. Just drop the love for cigarettes and crack. If you do have emphysema and don't take care of what you've got, you'll miss the thing you love most. Singing. And if it's Alpha-1 related emphysema, you could end up loosing those lungs quicker than you thought.

The doctors said I was too young to have emphysema at age 34. They were wrong. Get it... ]]> feeds@yuku.com (spiderqueen noreen) http://spiderspun.yuku.com/topic/384 Sun, 06 Jul 2008 17:44:26 GMT <![CDATA[ chat bug ]]> http://spiderspun.yuku.com/topic/383/t/chat-bug.html
If you had problems trying to enter the chat room last night, you're not alone. The server experienced some kind of bug that kept some Yuku chat rooms from opening. Spiderspun was one of them, unfortunatley. No word on if it has been resovled and updated yet, but if you are able to access the chat room....the bug was fixed.

Sorry for any inconvenience.

Have a safe and happy Memorial Day! feeds@yuku.com (spiderqueen noreen) http://spiderspun.yuku.com/topic/383 Sun, 25 May 2008 09:33:06 GMT <![CDATA[ dropping your dot extension ]]> http://spiderspun.yuku.com/topic/382/t/dropping-your-dot-extension.html .spiderspun next to your nickname. (i.e......sally.spiderspun, roger.spiderspun).

If you sign up at the Yuku main home page, you will receive a global extension .u (i.e...... sally.u,... ]]> feeds@yuku.com (spiderqueen noreen) http://spiderspun.yuku.com/topic/382 Sun, 04 May 2008 10:03:35 GMT <![CDATA[ How to Report Abuse ]]> http://spiderspun.yuku.com/topic/381/t/How-to-Report-Abuse.html Hopefully this will not be an issue, but should spammers, abusive posters, or chatters be a problem here (or any Yuku community), there are at least two ways to report them.

1. Submit a Help Ticket (Legal) at http://www.yuku.com/help/ticket
2. Go to the abuser's profile page and click on the "Report" button below their personal avatar. Be sure to include the link that the abuser is... ]]> feeds@yuku.com (spiderqueen noreen) http://spiderspun.yuku.com/topic/381 Sat, 03 May 2008 09:24:00 GMT